Upcoming surgery

Well, that's it...we're here. My father will have his leg amputated next week. What a trial all this has been. This week, in particular, has been very difficult. It seems every time we have a really bad week, you can't imagine it get worse...and then it does! We booked the surgery as a below-the-knee amputation, then this Wednesday the surgeon called me at work. He asked me if I had any questions, I said no, then after an awkward pause, I told him what I understood the plan to be with respect to the upcoming pre-surgical appointment and then the surgery date and procedure. That's when he said, "ya, about that..." He went on to say he had had a chance to read over my father's file and felt that a below-the-knee amputation might not heal properly due to the vascular condition. That there may not be enough circulation below the knee to heal properly and he felt an above-the-knee would be a better choice to avoid a second surgically procedure. I explained, that the hope of a prosthetic leg was what was keeping my father going and I couldn't guess how he would take this news, but also, that I would relay the new information to my father.

The rest of the day at work was a write-off, I was so upset. I talked with a colleague who recently lost her father and she talked me through how I would approach the topic with my father. Since I was going to be with my father the next day, all day, at the hospital for his pre-op, I would discuss it with him there. I did this, and after a few questions and a lot of thought, my father decided above-the-knee as he did not want to have two operations. He is very scared. He even asked where I would bury him if he didn't wake up. It is so difficult seeing him like this.

By the end of the day, he had resigned himself to the whole thing. The anesthesiologist recommended he be frozen from the waist down and not be put under general anesthetic. This is good, because he is less harmful to his heart. The same doctor recommended my father go to a rehabilitation centre in the west end. Which at first I couldn't get my head around, so today I drove over to see it. It's a long drive, but the site is very beautiful and apparently it's an excellent rehab centre specializing in amputees. Apparently they build the prosthetic on site. So, we'll tell the doctor we would like that placement.

I'm so worried for him. I'm also very hopeful. I think things will go well with the surgery and I think he's got the determination to push through the next few months.

So much pain...

The date is booked and we are all grieving. My father and I met with Dr. W of TEGH - an orthopedic surgeon - who will be doing the surgery. He explained the surgery and the risks. Because of my father's lack of circulation, the below the knee amputation is not looking promising, but it is the surgery they will be doing in order for my father to be fitted with a prosthesis. If it does not heal, they will "revise" the surgery - meaning, they will have a second surgery and cut above the knee. It's funny...(not ha-ha funny) but as I sit here typing it I'm numb. I've have to come to terms with this in the last couple of weeks and am just numb. At work, I have tried to get everything done in case the inevitable occurs. I've done all the work I can for Feb and March.

I hope my dad comes out of this surgery. I pray it goes well and I pray he will adjust well.

This past week...

everything moved very rapidly from Monday to Friday. I had planned on taking next week of for a couple of reasons - one to complete the Cognitive Coaching Workshop (which is two days) and secondly to accompany my father to his doctor's appointment without worrying about rushing back to work. As it turns out, that is not exactly what I will be doing.

This past Tuesday, when I checked my voicemail at work (didn't get one minute on Monday to check messages), there was a message from the doctor at the Hyperbaric Medicine unit at TGH. He said he had an open slot for my father and wanted to start right away. I didn't return the call, as I was paralyzed with the thought of figuring out what to do. I called Dr. D at TEGH, and left him a message questioning whether we were going to proceed with hyperbaric treatment or not. Dr. D called Wednesday, indicating that the results of December's test were positive and that he recommended we schedule the appointment and start therapy. Wednesday, when I got in touch with Dr. E at TGH, he asked we come in the next day. I told him that it would not work for me as I had a number of work commitments, plus that I want him and Dr. D to actually TALK to one another before I would agree to take my father to any therapy. They spoke and later that day, we had scheduled my father for his first treatment on Friday morning. On Thursday, when we were confirming the appointment Dr. E suggested an addition consult with Dr. C at St.M's Hospital (this is the vascular surgeon) to look at the feasibility of vascular bypass. The appointment was scheduled for Friday after the treatment.

Friday at 7:00, I picked up my father and off we went to TGH. When we arrived, we were directed to change into the clothing they provide that is "tank safe" and my father entered the hyperbaric chamber for about 2 hours. After that, we cabbed over to St. Mike's and met with Dr. C (who has to be one of the biggest "downers" I have ever met). Dr. C is well respected (so I'm told) in his field, but bed-side manner is greatly lacking. He went on to say, basically, that he didn't think the hyperbaric treatment would help my father and that all doctor's have biases toward their area of speciality. Well, I guess you have to be a door knob not to know they have biases...DA! I expressed to him that I knew this fact but that, unfortunately, these doctor's were all I had in terms of opinion with which I could make a decision. As it stands, I am the sole decision matter, as my father as left it to me. Without siblings, the best I get from those around me who care about me is "it's really up to you Lillian...I don't know what to say." And what can people say, it's such an awful decision - to amputate and face an unknown future or to not amputate and die. This is what I have to decide for my father.

So, for now we are continuing with hyperbaric, but all that might change again on Monday, I don't know. My father said he got a call from TEGH, from Dr. D's colleague, saying my father should come in and get his intravenous pack removed. My father has had a portable intravenous antibiotics pack since August, and my understanding was it was staying until the hyperbaric treatment was over or until the amputation. Since the hyperbaric treatment has just begun and the amputation has not been planned...I don't know why he would call and say that!? We'll have to see on Monday. I'm hoping my father mis-heard him but don't know. I'm hoping and praying for the best but preparing for the worst.

Cautious...some good news

Today my father was tested in the hyperbaric chamber and the test went well. Not great, not fantastic, not terrible, but well. Well enough to say that hyperbaric therapy might be helpful for my dad. That means, if Dr. D. is happy with the results of this test, he will determine the course of action and, I'm hoping, set into motion steps to resolve my father's current health situation...namely, determine how much will need to be amputated and when and how all that will occur.

I'm happy (cautiously, 'cause I don't want to be disappointed) because this bring bring resolution to his health and he won't have to wear the PICC line very much longer. Happy because for the next few weeks we don't have any doctor's appointments and can face Christmas on a positive note. It's been so busy these past few weeks with doctor's appointments, hospitals and sadness. I've been doing well for the most part, but the last month or so, I have been exercising less and eating more. I'm glad school is almost over and I'll have some time to rest. I'm going to try NOT to think about the new year, as it will be busy right from the start with my dad's appointments again.

Father in hospital

This has been another difficult week. My father's breathing seemed laboured on Monday when we went for his audiology test. I considered going upstairs in the clinic to see his doctor, but then I thought I might be overreacting. Tuesday I could still hear his breathing over the phone, then Wednesday when I called from the workshop it's sounded worse. I left early, went over to see him, and called the doctor's office to ask them what we should do. They said to come right over. They took my father in right away, sent him for x-ray and ECG and sent us to the hospital - congestive heart failure is what the doctor said he believed was going on.

Once we got to TEGH they promptly took us in. After a number of tests, they decided to admit it and that's where he is now. I'm frustrated because I haven't spoken with his doctor and don't know is going on. The doctor told my father he is going home on Monday, but I'm not sure that would be a good idea. I don't know what to do. This is probably one of the toughest situations I've ever been in...I feel so alone in making this decision. I pray God will give me some insight into what I should do.

Bad news...

I got the news from the vascular surgeon yesterday...they can't do a bypass surgery on my dad's leg because there are too many blockages in his veins to support the surgery. That means, if things don't miraculously get better (or, conversely, don't get worse) my father might have to have his lower leg amputated. I don't know what to do. I am so worried about him. I have talked with his case manager from the Community Care Access Centre and she's set up some supports for him. I think I need to think about long-term care. I don't know what to do...I hate this...I feel so bad for him.

I don't know if he understood what I told him regarding this doctor's news. He seemed happy - I think he confused this surgical option with the surgery for removing the leg. I'm not sure. He said something that really disturbed me. He said that he was happy with how much time he's had. I didn't pursue the conversation as I think I knew what he meant.